A new Canadian podcast that blends storytelling, investigation and a heavy dose of curiosity about the organ that drives us all. Listen as we explore the human & social impact of altered brains with both intimate and headline grabbing stories. Streaming now on, Apple, Spotify, Stitcher, Google Play & SoundCloud or wherever you get your podcasts. 

 
 

Season 2 “My Brain Is On Fire!” Available For Streaming Now!

Here’s how it starts. An innocuous flu.  A malaise. Within weeks paranoia, hallucinations and sleepless nights. Sometimes hyper sexuality and rage. Next writhing movement and grunts. Anger and torment replaced by vacant stares and silence. Relentless seizures, catatonia and coma.

Over 6 episodes I lobe you will take you to the Salem witch trials, modern day exorcisms, and uncover two cases of murder. We will delve into the science, diagnosis and modern treatment and hear the raw and personal stories behind anti-NMDA receptor encephalitis, sometimes known as the ‘brain on fire disease’. Join me and our survivors, experts and loved ones to unpack this elusive neurological condition.

***If you currently going through this illness or have recently been in acute care, we STRONGLY recommend listening in REVERSE order. The first 3 episodes have sound effects and content that may be triggering***


Episode 1: The Groton Witch

Release Date September 26th 2019

SHOW NOTES

Host: Laura

Guests: Nesrin; Director of the anti-NMDA Foundation, Dr. Christopher Uy; Neurologist & Partner physician with the Anti-NMDA Foundation, survivors and caregivers, Linda, Ruth, Deanna and Kim

Had the devil taken hold of Elizabeth Knapp? Elizabeth writhed and screamed. She lunged at Rev.Willard in a blasphemous rage. She went silent and had long catatonic periods. Her diagnosis? She was possessed. In the late 1600’s it didn't take much to cast out as a witch. But what if the reality was a rare auto immune disease? Join us and find out more. 

***This episode has potentially triggering content including screaming sounds, descriptions of symptoms and raw emotional content***


Episode 2: 68 Pounds

Release Date: September 26th 2019

SHOW NOTES

Host: Laura

Guests: Nesrin-Director of the anti-NMDA Foundation, Dr. Christopher Uy- Partner physician with the anti-NMDA Foundation, Elena Blanco-Suarez neuroscientist, Gwen Lamont-My Mom, Social worker and Writer, Survivors and caregivers Deanna, Linda, Ruth and Kim.

She was only 68 pounds on the day of her death, the size of an average 10 year old. But Analise did not die from her frontal lobe epilepsy. She died of starvation and endured over 67 exorcism rites at the end of her life. So what accounts for modern day exorcisms like these? How does illness perception, religion and science work with and against each other? 

***This episode has potentially triggering content including descriptions of murder, exorcisms and raw emotional content***


Episode 3: In The Kaleidoscope

Release Date: September 26th 2019

SHOW NOTES

Host: Laura

Guests: Dr. Christopher Uy- Partner physician with the Anti-NMDA Foundation and Neurologist, survivors and caregivers, Ruth, Kim, Linda, Deanna & Danika

As the flu like symptoms of the first weeks fade, paranoia, fear and aggression take their place. Trapped in another world, our survivors end up under psychiatric care still lacking a positive neurological diagnosis . An unfortunate inevitability for encephalitis patients. Hope can feel like it’s slipping away when lurking underneath is a neurological disorder systematically attacking your brain. Join us in the psych ward with our survivors and caregivers.

***This episode has potentially triggering content including descriptions psychiatric care, swearing and raw emotional content***


Episode 4: The Doctor Is In: An interview with Neurologist Dr. Christoper Uy

Release Date: September 26th 2019

SHOW NOTES

Host: Laura

Guests: Dr. Christoper Uy

This episode is pure Dr. Uy. Listen as Dr. Uy follows the arch of NMDA Receptor Encephalitis from on-set to diagnosis, treatment all while using up to date research. Use this episode as a learning tool or to share with your treating care team. If you are a curious bird like me, hearing Dr. Uy describe this disease is fascinating, and his mellifluous voice will have you listening to every. last. word. Full transcript available below.

***No content warning. Just pure amazing***


Episode 5: Mama Bears

Release Date: September 26th 2019

SHOW NOTES

Host: Laura

Guests: Caregivers and Advocates with the Anti NMDA foundation, Nesrin, Deanna and Linda

Three mothers. Two of them wonder if the disease will strike again and one wonders if it will ever loosen its grip. For some caregivers trauma and stress can be a new normal.  Loss of income, friends and on-going grief are common. But these three women also have a new crusade and purpose. There is an inherent changing of the guard from parent to fierce advocate. Nesrin, Linda and Deanna are all family caregiver advocates for the antiNMDA foundation and are tireless in their support of families. They all opened their world to us for this series. Be in the presence of their awesome strength and vulnerability.

***This episode has potentially triggering emotional content about acute and chronic illness and swearing.***


Episode 6: Isn’t She Lovely

Release Date: September 26th 2019

SHOW NOTES

Host: Laura

Guests: Our survivors Danika, Kim and Ruth

Encephalitis can steal you away for a weeks, months, years and sometimes even longer. For those in recovery the question remains who am I now? Like any brain injury, it can alter perspective, change relationships, affect your memory. It can derail your life course and change who you are. Our survivors Ruth, Danika and Kim unveil the rarely explored life after Anti-NMDA Receptor Encephalitis. This is a must listen as a caregiver or survivor!

***Emotional content ***


Season 1: The Cote Family

Our first season follows the Cote family through tragedy and triumph. Raw and unfiltered, catch a real glimpse on how brain injury affects a young family and its relationships over a span of 9 years. Intimate and intriguing, you won’t be able to wait to hear what happens next. Binge the whole first season now!


Episode 1: The Call

Released April 29, 2019

An arm wrestling match has unforeseen consequences for 18 year-old Fred. Nobody could have predicted that a New Year's party could have ended with him fighting for his life in the ICU.

Show notes


Episode 2: The Storm

RELEASED MAY 6, 2019

After many months in recovery, Elisabeth didn’t have the best hope, but was sure Fred was in there. The family get shocking news and have to adjust their mental map of Fred’s next phase of recovery.

show notes


Episode 3: The Coach

Released May 13, 2019

The family is split up between provinces as Fred continues to make a miraculous recovery. But another crisis is brewing and the family will have to face a certain and catastrophic loss.

Show Notes


Episode 4: I Was Like You

Released May 20, 2019

Finally, take this amazing opportunity to meet Fred. His story is not just his own, it is a powerful testament to family, love and resilience. Fred’s gratitude and wisdom will have you searching in your own life for the meaning we all crave.

Show Notes